Raising a child with special needs

Welcome to this beautiful unexpected life of raising a child with special needs. You are here because you are caring for a child with special needs. You didn't plan for this life. No one plans for it. Everything changes, is disrupted, life becomes complicated with a child that has complex medical issues. In this site you will find useful information about caring for a child with special needs. I share my experience about my own daughter who lives with a severe and rare form of epilepsy, autism, obsessive compulsive disorder, intellectual and developmental disabilities. You are not alone - welcome to this very special club. 

Development

December 2018

Book Cover Concept

Read More

what does the future hold? 

mom confession

The Grocery Store Worker That Gave Me Hope

Today I was checking out at my local grocery store. The young man bagging my groceries had special needs. He was very social with excellent eye contact as he asked me if I had any fun plans for the weekend. I smiled and said, “Yes. It should be a nice weekend to grill out.” I quickly asked him, “How about you? Do you have any plans?” He simply and politely said, “I plan to relax at home.” It was a perfect exchange of pleasantries from one to another. ​​

Read More

welcome
​I'm joni

I write about my
daughter living with
PCDH19 Epilepsy and autism. 

Debut memoir
Don't Sing Happy Birthday coming soon.
​
Writing is my therapy.
Please check out my blog posts.

​What a beautiful purpose I have.
Thank you for visiting.

Content on this website and blog are for informational purposes only. Contents on this website should not
​be considered medical advice. Readers are encouraged to talk to their physician for health-related issues.