Circa. 2008 at the sweet age of 4, my daughter Allie that lives with PCDH19 epilepsy, autism, OCD, and ADHD named her beloved yellow stuffed animal. Duckling Jack O'Lantern Suped is the name she swiftly choose one afternoon. I can’t make this stuff up guys! 15 years and a million wash machine joy rides later. The. Name. Stuck. It's still her favorite stuffed animal that she sleeps with every night.
Duckling Jack O'Lantern Suped a.k.a. “Ducky” has been by Allie's side through thousands of car rides, nine vacations, three surgeries, hundreds of doctor appointments, and approximately 4,200 seizures. I'm shocked that we haven't lost this damn duck.
Why the loyalty? Could her sweet plush duck appear real to her? Remember the Velveteen Rabbit; a children’s book written by Margery Williams in 1922. In the book, the stuffed rabbit was loved so much from the boy who got him as a Christmas present, that a fairy stepped out of a flower and magically turned him into a real rabbit. I know this book so well that I could recite on command. No joke that is how many times I have read it to Allie over the past 15 years. I have to wonder if she knows something we don't know about toy magic?
A person with special needs is, do I dare say is lucky? A wonder brain? Speaking about my daughter only, because I've known her for 15 years, she indeed has the most remarkable life. She lives in the moment. She lives by each minute or whenever her next snack or meal is. She spends her days lounging in her favorite soft cloths, playing her favorite games, reading her Curious George books, eating her favorite foods and wondering when the next trip to the amusement park will be. And her latest obsession is when she can get her chance to win at a giant claw machine.
What a life! No rush to have a car payment, get a job or worry about what to wear. Nope. Allie could care less about the latest pop group or fashion trend. This strong teen can't wait for her next pajama day while sitting next to her best-stuffed animal Duckling Jack O'Lantern Suped. #ilovemychild
Joni Brown writes about her life raising her daughter that lives with PCDH-19 epilepsy, autism, anxiety and OCD.