My daughter is the strongest human I know. She lives with PCDH19 epilepsy. After her first seizure in 2004, we were living each day to stop seizures. During those dark days, so much energy was focused on the bad and the "what if's." She has come along way overcoming side effects of this disease. After 15 years, I know the meaning of gratitude. I am grateful each day she is seizure-free. She is vertical and ready to go. If she is happy, that is just enough for today.
Joni Brown writes about her life raising her daughter that lives with PCDH-19 epilepsy, autism, anxiety and OCD.