Don’t Sing Happy Birthday: A Mother’s Journey through Autism and Epilepsy
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Writing is my therapy

3/31/2023

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It started out as a family blog to be more organized. Over the years, it has turned out to be better therapy than I ever imagined. I vomit out my emotions onto the screen. Now, I write as an outlet, it's fairly selfish; I do it for me.
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SEIZURE TRACKING FOR TODAY'S LIFESTYLE

3/1/2023

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SproutData is a complete personal real-time seizure tracking, organization and communication tool. Access the SproutData website from your phone, computer and tablet to help you manage seizures, events, medications, conditions, doctors and more. Add family members and caregivers to help you better communicate the health of a person.

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Your custom dashboard allows a quick view of your data in real time.
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With a few clicks, a user can log each event or seizure. A time/date will autofill, or you can go back and easily adjust the event at your convenience.
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​Your data is visually represented to help you find possible patterns.  Easily view external factors that may or may not contribute to the seizures. 

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SproutData is not just for seizures. Its a powerful tool to store information such as doctors, medications, dates of past surgeries and other health-related information. It's all in one place and easy to access your health notes anytime, anywhere.
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Medication management is the number one requested tool. With the medication database, users are better organized and have the ability to see active or inactive medications.
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​If you are tired of a spiral notebook and pen to jot down your important health information then it's time to create your free account here https://sproutdata.org/

I am affiliated with SproutData; my husband is the computer programmer that created the site to organize our medical notes from our daughter's complex medical issues.
​To read the full story about our family and how SproutData helped us see the Facebook page linked below.

Follow SproutData on Facebook 

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Poem

3/1/2023

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​March 26 is Purple Day - Epilepsy Awareness

3/1/2023

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March 26 is Purple Day
Purple Day is an international grassroots effort dedicated to increase epilepsy awareness globally. On this day people world wide are invited to wear the color purple and attend events to show support of epilepsy awareness.

​Who is Cassidy Megan?
She is the brave teen living with epilepsy from Nova Scotia, Canada. She is the force behind the popular Purple Day March 26 that brings awareness to epilepsy. Not only in her home country of Canada but globally with the help of New York-based Anita Kaugmann Foundation and Nova Scotia. 

Cassidy would like purple day every day, for more information about her and this particular day http://www.purpleday.org/
Or any questions feel free to email the organization at [email protected]

A simple wish from Cassidy that wanted to spread epilepsy awareness around the world. She has succeeded and we all benefit. 

Epilepsy
Epilepsy is a chronic disorder, the hallmark of which is recurrent, unprovoked seizures.  A person is diagnosed with epilepsy if they have two unprovoked seizures (or one unprovoked seizure with the likelihood of more) that were not caused by some known and reversible medical condition like alcohol withdrawal or extremely low blood sugar. 
Learn more about the basics of epilepsy.

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​7 Quick Facts About Seizures and Epilepsy:
  • Epilepsy is not rare. 1 in 26 people are diagnosed with epilepsy in the U.S. and approx. 65 million people worldwide.
  • Epilepsy is not contagious.
  • People die from seizures. One cause is SUDEP - Sudden Unexpected Death in Epilepsy.
  • Epilepsy is a chronic brain disorder with no known cure.
  • Epilepsy can start at any age.
  • People having a seizure cannot swallow their tongue. No human can physically swallow their tongue.
  • Do not restrain a person having a seizure. Generally speaking, they will end on their own. Follow basic first aid if you see fit.
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My daughter Allie.
Happy to be in her favorite purple pajamas. 

​About the writer
Joni Brown is a mother of a teenage daughter living with PCDH-19 epilepsy. It is a rare form of epilepsy that causes her to have hundreds of seizures every year without a known cure. Despite all of her medical issues, her daughter lives a full and happy life.
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