Author Joni Brown
Think about this when people talk about mandating masks in public schools.
Today, I saw this neck tag on a lanyard that someone would wear if they do not wear a mask because of the disability they live with. This particular tag was signed by the ADA Americans with Disabilities -not sure if it is from the ADA, but it is sold on ETSY. Image from ETSY. For some people with disabilities, mask-wearing is not an option. For a person like my teen daughter Allie with PCDH19 Epilepsy, we need to see her lips and face and not have anything obstructing her face. For example: 1. A mask covers up her blue lips. This is a signal she is at the start of a seizure. 2. A mask can get in the way of her gasping for air that she desperately needs. 3. A face shield could cause more restriction and danger when she is in a seizure as she violently moves around during a tonic-clonic seizure. These are just a few examples I think about that pertain to health and safety. Then the fallout. I fear that she will get teased and bullied from staff and students for not wearing a mask or face shield. I can hear the conversations now. "Oh, my staff would never pressure Allie to wear a mask!" But, they are human. Staff and students will have their own agenda. They will not have filters when it comes to letting everyone know about their mask protection. These thoughts race through a mother's mind at 2 am. These thoughts race through a mother's mind throughout the day when she is in school. People with disabilities have rights. And, for a good reason. Let's not forget that we are not perfect. Let's not forget that we are not all the same. And, most importantly, let's not forget to be kind.
2 Comments
Amy
8/14/2020 06:16:35 am
I have been struggling with this for my son, as well. For the same reasons you mentioned. He will tolerate specific cloth masks (which is extraordinary, actually, given his sensory issues), but then I can’t see his lips going blue, and it is one more barrier to air during a seizure. Paired with his helmet, I fear it will cause delays as we try to get it off him during a tonic clonic seizure. His school is going to provide him with a hearing impaired mask. We will try it, but who knows if he will keep it on. I am still feeling so uneasy about it. I want his precious teachers to feel safe, but at the end of the day, we will do what we need to in order to keep him alive. I feel like this is lose/lose for him.
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